Endometriosis Pelvic Pain Interdisciplinary Cohort (EPPIC) Data Registry

In collaboration with the BC Women’s Centre for Pelvic Pain and Endometriosis patients with endometriosis and/or pelvic pain have the opportunity to participate in the Endometriosis Pelvic Pain Interdisciplinary Cohort (EPPIC) Data Registry.

The data registry collects longitudinal data reflecting patient history, pain, psycho-social factors, quality of life, physical exam pain mapping, specialized ultrasound results, surgical findings and pathology. This includes the completion of validated questionnaires yearly for 5 years to assess depression (PHQ-9), generalized anxiety (GAD-7), pain catastrophizing (PCS), sleep scale, and endometriosis health profile (EHP-30).

With a goal of better understanding endometriosis we are particularly interested in;

  • predictors of chronic pelvic pain;
  • sexual pain;
  • sexual quality of life;
  • central sensitization;
  • characterizing endometriosis
  • linking gene mutations to clinical symptoms and;
  • exploring transnational and behavioral implications of our research findings.

 


clinicaltrials.gov NCT02911090