Data Registry

 

 

 

In collaboration with the BC Women’s Centre for Pelvic Pain and Endometriosis patients with endometriosis and/or pelvic pain have the opportunity to participate in the Endometriosis Pelvic Pain Interdisciplinary Cohort (EPPIC) Data Registry.

The data registry collects longitudinal data reflecting patient history, pain, psycho-social factors, quality of life, physical exam pain mapping, specialized ultrasound results, surgical findings and pathology. This includes the completion of validated questionnaires yearly for 5 years to assess depression (PHQ-9), generalized anxiety (GAD-7), pain catastrophizing (PCS), sleep scale, and endometriosis health profile (EHP-30).

With a goal of better understanding endometriosis, we are particularly interested in predictors of chronic pelvic pain, surgical outcomes, painful sex, sexual quality of life, central sensitization, characterizing endometriosis, linking gene mutations to clinical symptoms and exploring transnational and behavioral implications of our research findings. clinicaltrials.gov NCT02911090

 

Data is available on request to qualified investigators as per current ethical approvals and data sharing agreements set by the University of British Columbia Research Ethics Board.
To request new data please complete our data access request form: To request data from an existing paper please contact us at:
Endometriosis Pelvic Pain Interdisciplinary Cohort Registry & Tissue Bank
Endometriosis & Pelvic Pain Laboratory
Provincial Health Services Authority / University of British Columbia
4500 Oak Street (Box 42) Room B323
Vancouver BC V6H 2N9
cppresearch@cw.bc.ca
604-875-2424 ext. 4924